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In memory of Jack Hagelin Sept. 04, '02 -
Mar. 27, '07
* I posted this video June 03, '06 after he
was discharged from the transplant unit.
Jack Passed away peacefully surrounded with
Love at the Children's Hospital of
Philadelphia, from complications from
pneumonia and after a 4 and ½ year battle, a
diagnosis of NEMO Primary Immune Deficiency
and Ectodermal Displasia, two rare genetic
disorders. His treatment included a Stem
Cell Bone Marrow transplant. In his short 4
and ½ years he helped science gain more
knowledge for this rare genetic condition and
through this knowledge to help other children
with this same condition.
Support NEMO research here
http://www.andy.org.mx
www.andy.org.mx
Tags : hittheroadjack hit the road jack |
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